Enjoying the Ride
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We hoped. We prayed (some of us did, anyway). We researched. We organized. The MS patient population and a few sympathetic practitioners stood up to the medical establishment, goddammit! I wrote forty blog posts about CCSVI (forty-one now). But, given what we know today, there’s something that must be said.
I was wrong.
We were wrong.
For those unfamiliar with this saga, the term CCSVI was coined by Dr. Paolo Zamboni of the University Ferrara, Italy, in 2008. The acronym stands for “chronic cerebrospinal venous insufficiency.” Zamboni theorized that restrictions in the veins that drain the central nervous system — the brain and spinal cord — contributed significantly to MS disease activity. Furthermore, he believed opening such restrictions via balloon angioplasty or the placing of cardiac stents could improve MS outcomes.
|(Photo credit: Wikipedia)|
We’ve all heard this platitude before, but I have some questions about it.
After all, isn’t it a perversion of human decency to use another person’s suffering to improve our own outlook? Shouldn’t the acknowledgment that others are suffering make us feel worse, not better? Does it demonstrate a lack of compassion that we psychologically benefit from recognizing the distress of others?
No, no, and no.
A company called MyTherapy, which makes a smart phone app that helps patients track their medications, recently compiled their list of 15 Excellent MS Blogs, and Enjoying the Ride made the cut. Check it out — and congratulations to the others who were mentioned.
A Programmer in the UK Comes to My Rescue
I’ve developed a problem with mousing. Until recently, I could operate the right-click and left click buttons on my computer mouse. Lately, however, when my brain sends the command for either my index finger or my middle finger to click the appropriate mouse button, both fingers respond and both buttons are depressed. This tends to screw things up.