I beginning to believe that my MS took a turn for the worse and I'm afraid that I'm not coming out of it. I had a 3-day course of IVSM the beginning of August. The following week, I had my 12th Tysabri infusion. The following week I had another course of IVSM, and now I'm in the middle of a 2-week Prednisone taper. My tremors, balance, leg weakness and fatigue are all bad.

Through Gentiva, the home health organization, I am now receiving home PT. Their plan is called Safe Strides, and it has to do with balance between your legs, feet, ears and eyes. Tuesday, I had a 2-hour assessment with my PT. Today, she is going to begin working with me. I will have two sessions a week for eight weeks, then I'll be reassessed.

We have had a very busy, but frustrating week.

First off, I was to begin home physical therapy yesterday (Friday) morning. Thursday, I got a call from the therapist telling me that they were still awaiting approval from my neuro for physical therapy. I told her it was my impression that his office had sent in all the needed paperwork. She replied that they sent the orders for evaluation (which was done), but that they were waiting on orders for the therapy itself before they could begin. I told her to come out Tuesday, that I was almost positive the office would get the paperwork to her company by then.